I just talked to Dr. Harmon (I really like her) and she said it looks like Pepper’s left eye is pushing out. I immediately thought it would be a tumor – which she believes could possibly be the case. However, the only way to know for sure would be to get an MRI – which means sedation, organizing with somebody up here to get the MRI, and then it would take 2+ weeks to get in. I told Dr. Harmon that I thought about all the crap Mike went through and the ONLY thing that helped with his brain growths was steroids, so I decided to forego the MRI completely – it’s thousands of dollars, I’m sure. I didn’t even ask. Dr. Harmon said what she really wants us to do is keep a journal of her behaviors while on the steroids – so we need a notebook for that.
Treatment: we are putting her on steroids now … and increasing her Potassium Bromide, but her phenobarbital will stay the same. We will wean her off the steroids eventually, or maybe not, she might be on them until the end.
Sadly, it looks like Pepper’s life is going to be shortened because she might have a brain tumor (but only the MRI would tell us for sure), and it’s not even known if there are any MDs that could surgically remove the tumor(s). So, we are taking the least expensive approach and looking at her best quality of life – keeping her seizure free and shrinking any tumor(s) she might have with the steroids.
March 2018: the morning we left for Amsterdam – her seizures increased when we were gone; they started in January 2018 while we were in Hawaii & Oregon.
Posted by Jamie Lang | Filed under personal
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